澳门彩开奖

Mark on finding people who just 'get it'

Friday 10 March 2023

澳门彩开奖 West London


Mark and Mike, two brothers, hugging

I鈥檓 a professional musician and I鈥檝e been fortunate enough to play the drums alongside legendary artists.


My career has been a blessing because the life of a musician is very social. As someone with a lifelong stammer, I had always been shy and withdrawn.

I began properly noticing my symptoms in 2017. It felt like indigestion but got worse over time.

It got to the point where I was playing a show and had to leave the stage.

Surgery

In 2018 I started feeling like I was being weighed down in the pelvis. I was sent for tests.

After MRI and CT scans, I was fast tracked into surgery.

The pain was caused by a bowel obstruction. Not only that, I had a tumour outside the bowel, near my bladder, the size of a grapefruit.

My surgeon told me that I needed to have a colostomy resulting in a stoma.

I was diagnosed 2 weeks after surgery with PT stage 4 carcinoma of the sigmoid colon.

Getting through treatment

I was told that I was lucky they hadn鈥檛 confirmed cancer before my surgery, because the usual procedure would鈥檝e meant putting me on chemotherapy first. I wouldn鈥檛 have lived to see its completion.

I had chemotherapy followed by radiotherapy in the months following. As a freelance musician, taking the tube to hospital daily was the closest I ever felt to being a commuter.

I was brought back from the brink and I鈥檓 now four years into my recovery. Looking back on how close I came to dying feels surreal.

Sometimes I feel like an imposter when receiving platitudes on how 鈥榖rave鈥 and 鈥榗ourageous鈥 I鈥檝e been.

Nope鈥 I just wanted to survive.

'Magic stoma鈥

It鈥檚 possible to reverse my stoma someday but it鈥檚 currently too risky. So, I鈥檝e accepted that this is me for the foreseeable future.

I鈥檝e met others with stomas - or 鈥榦stomates鈥 as we鈥檙e known - some of whom hate their bag. I consider myself fortunate that I accepted mine, though I really empathise with those that don鈥檛.

I feel that my stoma has been more of a gift. I even call it 鈥楳agic Stoma鈥. It has been a bit like a rebirth.

I like to tell people that sitting down to poo is somewhat overrated.

The great leveller

As a result of my stammer, I鈥檝e suffered from lifelong social anxiety.

While I鈥檝e never been ostracised, I realise in hindsight that I made my own prison by being so self-conscious.

I still stammer. It can鈥檛 be cured; it can only be controlled.

But in the four years since my treatment, I鈥檝e been able to control it a lot more.

After my surgery, I thought 鈥淚鈥檒l be damned if I鈥檓 going to carry on like this鈥.

I鈥檓 no longer going to live my life acting as though I鈥檓 less than anybody else just because I have a stoma or a stammer.

Surprisingly, having a stoma has had a positive effect on my physical confidence too. I鈥檓 much more body confident than I鈥檝e ever been.

I used to look at myself in the mirror and long for certain things to be different. But now I choose to focus on the things that feed me, not the things that eat me.

Living with a stoma is the great leveller; no one is better than anybody else. We all inhabit these vehicles which take us from A to B. Yet any one of us can break down and then need patching up.

For me, it would be terrible to have survived cancer and then spend the rest of my days feeling 鈥榣ess than鈥 in some way.

I have been given another lease of life鈥 so why live it as a half-life?

Making friends at Maggie鈥檚

Maggie鈥檚 was recommended to me by my medical team and I started going after my first chemotherapy cycle. That鈥檚 when I met Louise who is an absolute angel.

I wanted to connect with a community of people who have been through a similar thing to me, and that鈥檚 exactly what I found.

I鈥檝e made friends here and I know there are friends I have yet to encounter.

Meeting people at Maggie鈥檚 has kept me buoyant; finding people who support each other however they can, has been vital.

Despite my stammer, the thing I enjoy the most is conversation. I relish in it at Maggie鈥檚. I find it so cathartic to share my story and support others.

Every time I pop in, I wonder who I鈥檓 going to meet next. You meet people who, moments before, you don鈥檛 know from a can of paint.

But the next moment, before you know, just by walking through the door, you鈥檝e made a friend.

You can plug in at Maggie鈥檚 if you ever need recharging, if you need a shoulder.


We鈥檙e here for you

Our cancer support specialists, psychologists and benefits advisors are here for everyone with cancer, and all the people who love them.

Come and see us at your nearest Maggie鈥檚, call us on 0300 123 180 or email us at enquiries@maggies.org

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